The Indo U.S. Organization for Rare Diseases (IndoUSrare) is a committed independent non-profit organization that aids individuals with rare and underserved medical conditions of Indian origin in the USA, India, and worldwide.

By encouraging collaboration among researchers, healthcare providers, and patient communities, IndoUSrare seeks to advance the development of diagnostics and therapies through thorough education, advocacy, research, and grant initiatives.

Our mission highlights patient-centric programs that align with the FDA's patient-focused drug development (PFDD) paradigm. These initiatives include the Diversity Patients Alliance Program, a tech-enabled Patients Concierge, the Corporate Diversity Advisory Council (CDAC), research programs, and national and international conferences, all aimed at providing substantial support and engagement for those affected.